I feel a little one-dimensional lately. I’d wanted to write something other than this. But I’ve been doing little other than take care of my sick girl.
Yesterday we drove 2 hours across the state for an early morning appointment today. It’s the third trip there in two weeks. And I’ll repeat it again next weekend for a specialized MRI.
This pic is as close as I typically get to exploring nature outside.
But I’d do it every day if that would relieve my girl’s pain. If I only could.
Some days it feels like we are never, ever going to be done. What was unthinkable a few months ago looks more and more real as doctor after doctor is baffled.
She’s lost more than 30 pounds since February, 6 of which was in the last week.
Now, instead of planning for her day camps, summer day trips, and the start of swim season, I’m beginning to wonder if I need to figure out how to homeschool in case she’s too sick to go to school.
The what ifs are overwhelming. Hope seems slim. We seem to be a walking testimony that “hope deferred makes the heart sick.” And we’re desperate for the day our longing is fulfilled and blossoms into a tree of life.